Day 11 of round 4

On the eve of my right eye cataract surgery that I’ve worried over for the past 2 years (until it was finally time), seems like the right time to update Willie’s current status.

I can’t say it’s been a good time. Emotionally and physically it’s been challenging for both of us. He’s been struggling a lot with tiredness, lethargy, and eating. Definitely eating is a challenge. Absolutely nothing tastes good to him. Not water, not food of ANY type, absolutely NOTHING. As a result he has lost even more weight. He weighed in on July 1 20 pounds more than he weighs today. This makes me frustrated and sad. My worry is so much and about so many things as I’m sure you can imagine.

Though he barely eats, trust me he swears he “eats all the time”, he has managed to move around and replace a few sprinkler pipes and mow and get shit done. This probably helps him lose even more weight. But also keeps up strength. After awhile he needs to rest and take care of himself. In addition to the extra weight loss this time, he has battled a skin rash on his upper chest & back, and watery watery watery eyes So annoying all of it

He/we meet with his surgeon, Dr. Loewen this Thursday on the 11th at 3:20pm. This is a follow up appointment to discuss the surgery and next steps. My best guess for surgery is that it will be in late October. He has a PET scan on 10/10 and another EUS (endoscopic ultrasound) not sure when.

We are both grateful to all the support from caring friends and family who have been checking in, bringing tempting food over, helping when needed in the ex-orchard, and sending prayers-love-notes. All of this means so much. Especially grateful when we just need to be alone and rest It’s been tough. Thanks to all for understanding this difficult journey.

Tomorrow I will embark on my first cataract surgery. The second one is scheduled for 9/23. I’m more excited about this than scared now. I am hopeful that it will help me to see better and clearer. I’m grateful for all the encouragement about this process and that has helped me accept it so much more because truthfully all of this shit terrifies me so much. I wish it didn’t.

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